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28308Estimate Value
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Myeloma ForumMum considering refusing Myeloma treatment – …
WEBmyeloma ForumMum considering refusing myeloma treatment – what can I tell her? – myeloma Forum My mother was diagnosed with myeloma last month. Her mother died 45 years ago of myeloma within just one year of diagnosis, so my mum – not having read up on current treatments – thinks that she too won’t live for much longer.
Forum.myeloma.org.ukMyeloma ForumMum's beginning treatment on Cyclophoshamide …
WEBHaven't been on site for a while. Now mum's myeloma has been confirmed and after an MRI showing three lesions and her Para Protein levels continuing to rise, the Consultant has decided to start treatment. Mum is 87, so a good age I know, but it doesn't matter how old mum is the thought of losing her is devastating for me.
Forum.myeloma.org.ukMyeloma ForumDEXAMETHASONE- debilitating side effects …
WEBBACKGROUND- Diagnosed with LCDD April 14 after initial tests concluded no myeloma, BUT MGUS. Also CKD stage 3A Referred NAC May 14 – NO AMYLOID. LCDD is treated as myeloma. NAC London have recommended for me to have 6-8 cycles of VCD followed by an Autologous SCT.
Forum.myeloma.org.ukMyeloma ForumVelcade for a second time, anyone? – Myeloma …
WEBYes, my wife Cecilia is now on her second course of Velcade. The first course, which included the dreaded Dex was particularly harsh on her, but it did the business. However, after about three months she had to come off it because the adverse effects were too debilitating. That was about one year ago.
Forum.myeloma.org.ukMyeloma ForumTo ask or not to ask….that is the question. – …
WEBThe best advice I can give is arm yourself with knowledge,read up on myeloma look at back issues,a must is you get on the telephone and ring Maggi or Ellen and talk to them!!!!!:-) They will send you booklets all about myeloma,it might seem hard at first,but you will soon pick up on the medical terms.!!!! Get on the phone!!!, Eve
Forum.myeloma.org.ukMyeloma ForumMy Remission is over!! – Myeloma Forum
WEBI was admitted on 29th `january as an emergency I had Kidney failure and the myeloma was so aggressive. The doctor said it was wall to wall inside my body but he didn’t think my body would handle the treatment needed to save me, I was in the critical care unit for 4 days and the family were brought in basically to say goodbye to me.
Forum.myeloma.org.ukMyeloma Forumrevlimid and vorinostat – Myeloma Forum
WEBThe young Dr who discharged me said how on the CT scan he could see lots of myeloma cell damage to my skeleton, he actually sounded shocked, obviously first time he has seen the damage myeloma does! (No surprise for us myeloma sufferers though.) Babs. RE: revlimid and vorinostat
Forum.myeloma.org.ukMyeloma ForumDay 12 after SCT and Kevin is discharged! Query …
WEBMy husband was diagnosed This January with non secretory myeloma and has just completed his initial treatment and we are about to embark on the SCT journey. I was wondering how Kevin was doing now you are home after his discharge after only 12 days we were told plan for a four week stay at the NHS hotel and anything less is a bouns!
Forum.myeloma.org.ukMyeloma Forumcaring for relapsed hubby on dexamathasone, …
WEBmyeloma Forumcaring for relapsed hubby on dexamathasone, Revlimid; about to start Velcade – myeloma Forum Does anyone have experience of caring for someone who has or going through this regime. I’ve read a lot about side effects of Velcade and am concerned how my hubby will cope with all the medication and how I can best look after him
Forum.myeloma.org.ukMyeloma Forumjust been diagnoised – Myeloma Forum
WEBhi all ,my name is carryann . im a 65 years young grandmother of three. diagnoised with mulitble myeloma just before christmas. started first cycle CDT 21 standard route. any advice would be much appriciated. any tips , when do side effects kick in ! I'm on this for 6 mths. just been diagnoised
Forum.myeloma.org.uk