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Founded in 1989, the Foundation for Ichthyosis & Related Skin Types (FIRST) is dedicated to providing support, education, and research for those affected by ichthyosis and related skin types. Based in Overland Park, Kansas, FIRST offers a variety of services to its members, including:

* Support groups and online forums
* Educational materials and resources
* Advocacy and outreach programs
* Research grants and scholarships

FIRST is a 501(c)(3) non-profit organization that relies on donations and grants to fund its programs and services. The organization has a strong online presence, with a website, social media pages, and an online store. FIRST also hosts an annual conference, which brings together individuals and families affected by ichthyosis, as well as researchers and clinicians.

In addition to its core programs and services, FIRST also offers a variety of other resources for those affected by ichthyosis. These resources include:

* A directory of physicians and clinics that specialize in the treatment of ichthyosis
* A list of financial assistance programs that can help with the costs of treatment
* A library of books and articles about ichthyosis

FIRST is a valuable resource for those affected by ichthyosis and related skin types. The organization provides a variety of services and resources that can help individuals and families cope with the challenges of living with these conditions.

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